What happens when the beneficial ‘alone time’ described by Oscar Wilde exceeds the quantity of time we would like to spend alone? How do the elderly or people with neurodegenerative diseases such as Alzheimer’s perceive these times?Continue reading
TeNDER has joined the Security Research Rapid Response to COVID19 (Sec3R) initiative. Sec3R gathers the expertise of various organisations, institutions, and projects to provide a knowledge platform for public authorities, emergency services, and researchers, among others.
The platform assembles trustworthy and free-to-use resources from within the security research community. These include tools that help secure communications, as well as others that combat growing misinformation surrounding the current pandemic.
In addition, Sec3R will bring together research, datasets, and information on COVID-19, cybersecurity, and other related subjects. Consult the website regularly to access continuously updated resources.
In 2016, The Lancet’s “Global Burden of Disease” report estimated that 6.1 million people were affected by Parkinson’s disease worldwide, with the number set to double by 2050.
Parkinson’s symptoms gradually develop as cells in a specific part of the brain are affected in ways that impact movement. Researchers across the world work on different dimensions of the disease: from seeking to understand the course of the disease and its possible triggers and predisposing factors, to developing treatments. In the realm of care, projects like TeNDER are working to extend the autonomy of patients with Parkinson’s disease, among others.
Every 11 April – on the anniversary of James Parkinson’s birthday, the physician who first identified the disease in 1817 – people worldwide coordinate to raise awareness of the condition and the social, economic and psychological impact it has on individuals and communities. However, efforts to rally support for patients, as well as for research and access to care, happen year-round. There are local, regional, national and global organisations anyone can reach out to for support.
This year, in the context of COVID-19, many awareness-raising campaigns will take place only online. And in addition to these, groups and organisations have mobilised to provide valuable information for patients with Parkinson’s disease and those who surround them. TeNDER consortium partner Asociación Parkinson Madrid (Madrid Parkinson Association), has adapted guidelines in Spanish for those affected; and the European Parkinson’s Disease Association has also gathered important resources in English.
In the context of COVID-19, TeNDER partners – particularly those who work directly with patients – are taking precautions to ensure the safety of patients, carers, health professionals, and the general population.
Spominčica – Alzheimer Slovenia, Servicio Madrileño de Salud, Asociación Parkinson Madrid, Schön Klinik and the University of Rome – Tor Vergata are currently implementing national and international COVID-19 health protocols (follow the links above to learn more).
While doctors, nurses, and other health professionals and staff are working tirelessly in the frontlines, researchers are working on developing curative and preventive care. Many are also studying behaviour, to help improve socio-economic policies and responses.
Advances in the fight against COVID-19 are aided by international research collaboration: research building on research – its successes and its failures. The European Commission has launched special actions to facilitate such efforts. Meanwhile, The Lancet has reported that research organisations across the world have formed a coalition to support resource-limited settings. This is by no means an exhaustive list.
To learn more about ongoing research worldwide, consult research university websites, the World Health Organization’s COVID-19 research database, etc. In addition several news sites and scholarly journals have opened access to COVID-19-related information.
For practical information on the impact of COVID-19 measures and on international guidelines, here are some additional external resources for specific groups; e.g., elderly people, patients with chronic diseases, etc.:
Disclaimer: the information provided in external links does not represent the views of TeNDER.